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Annika Richterich examines the ethical questions raised by large-scale data collection and research. She considers how data practices are presented, who can influence them and what happens when technological possibilities move faster than established forms of consent and accountability.
Biomedical research provides a central setting for the discussion, alongside debates about privacy, security, open data, algorithmic bias and data philanthropy. The book follows the relationships among researchers, public institutions and commercial data holders, examining the assumptions that shape their decisions.
Published in 2018, this study combines data ethics with an analysis of the ways institutions discuss and organise research. The original text, diagrams, bibliography and index are retained.